The National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky's Human Development Institute oversees three medically reviewed programs that complement each other in providing important resources and information for new and expectant parents learning about a diagnosis of Down syndrome: Brighter Tomorrows, Lettercase, and Down Syndrome Pregnancy. These programs also offer valuable resources for medical professionals delivering those diagnoses. You can also learn more about prenatal testing and available resources through this National Center webinar hosted by Down syndrome expert Dr. Brian Skotko and bioethicist Mark Leach.
The National Center provides this clearinghouse of professionally recommended resources so that medical practitioners, expectant parents, and new parents have access to accurate, up-to-date, and balanced information about Down syndrome. The activities of the National Center include the dissemination of free resources to medical providers and their patients; the development of new materials; and national medical outreach through journal publications and presentations at medical conferences.
The National Center for Prenatal and Postnatal Down Syndrome Resources relies on donations to continue providing free support and resources to new and expectant parents and medical providers. You can make an online donation by check or credit card, and you will be directed to the University of Kentucky Office of Development. All donations are tax-deductible and receive an acknowledgement letter, which also serves for tax purposes. Please consider donating today.
Provides a comprehensive website with information in English and Spanish for new and expectant parents learning about Down syndrome. Includes the most current research about Down syndrome, links to resources, and life glimpses. Funding and support for Brighter Tomorrows was provided by the U.S. Centers for Disease Control and Prevention (CDC), National Center on Birth Defects and Developmental Disabilities (NCBDDD), through a cooperative agreement with the Association of University Centers on Disabilities (AUCD).
Offers an interactive tutorial to provide physicians with current knowledge about Down syndrome, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome in utero and after delivery. This tutorial also includes virtual family cases. Both a full tutorial and refresher courses are available.
The site for medical professionals is located at brighter-tomorrows.org.
Offers the Kennedy Foundation's "Understanding a Down Syndrome Diagnosis" booklet that was prepared with assistance by representatives of the national medical and Down syndrome organizations. The booklet is intended for pregnant women first finding out about a prenatal Down syndrome diagnosis. Includes basic information about Down syndrome and about families who have a child with Down syndrome; potential medical complications; resources about Down syndrome; and reproductive options. Available in print or as a free digital download in English and Spanish. Lettercase also includes "Understanding Prenatal Screening and Testing for Chromosome Conditions" in English and Spanish prepared with assistance from representatives of The National Society of Genetic Counselors with funding provided by the U.S. Administration on Intellectual and Developmental Disabilities (AIDD), though no official endorsement from AIDD should be inferred.
Offers a printed bifold, "Delivering a Down Syndrome Diagnosis" with a short summary of the best practices for delivering a prenatal diagnosis of Down syndrome.
All materials are located at lettercase.org.
Offers a website with a blog for women who are pregnant and expecting a baby with Down syndrome. Also includes the books “Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome” and “Your Loved One is Having a Baby with Down Syndrome” available as free digital downloads or printed books from the distributor, Woodbine House.
Online materials are located at downsyndromepregnancy.org.